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Join the Registry today and help us better understand and improve the lives of individuals living with 3q29 deletion syndrome and 3q29 duplication syndrome.  


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Welcome to the 3q29 Deletion and 3q29 Duplication Patient Registry


Our mission is to learn more about 3q29 Deletion Syndrome and 3q29 Duplication Syndrome, and improve the quality of care for individuals with this diagnosis. Because the 3q29 Deletion and 3q29 Duplication are so rare, it is difficult for medical practitioners, familes, and individuals to know what to expect.  Our goal is to create a resource for families and professionals to address this gap in knowledge.